How do regulations ensure that sensitive genetic data is handled with care and privacy safeguards?
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Regulations ensure that sensitive genetic data is handled with care and privacy safeguards by establishing guidelines and requirements that organizations must follow when collecting, storing, using, and sharing such data. These regulations may include rules about informed consent, data encryption, secure storage practices, data anonymization, restricted access to the data, and compliance with privacy laws such as the Health Insurance Portability and Accountability Act (HIPAA) and the General Data Protection Regulation (GDPR). By enforcing these regulations, authorities can hold organizations accountable for protecting sensitive genetic data and prevent unauthorized access or misuse.